A professor’s u turns music into ‘bubble mat’ genetic marker

Edmanton’s boy’s rare of music by Alberta UniversityBubble boy ”disease Inside the song.

Comes from the inspiration and the melody Jacob all Researchers Hope is a plan to raise awareness about DNA and his mother’s lines and the status of the Jacob.

“This is, one of these conditions that are not supported by the health system should shine,” said a music professor Michael Frishkofoff.

3:48
Health matters: Edmanton family has been isolated for over a year because ‘bubble mat syndrome’

In August 2019, when he had just 10 days, it was found to have ACA SCIT for the Jacob – or severely integrated immune deficiency.

This means He has no immune system In order to protect Jagob, the family lived in a “bubble” and kept the contacts with others.

His immune system was very weak and a mucus may have killed him.

He was not expected to pass his second birthday, and for many years, he had members of his family he had not met.

3:52
Health matters: Alberta ‘bubble mat’ family helps others in spite of disaster health conditions

Jacob began to go to monthly treatments, where he received plasma changes, giving him 25 percent of the immune system.

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To help raise awareness of the status of the Jacob, Fryishkofoff, known in the use of mechanical learning in music, composed a music -based music, and he was approached by a doctor, and the founder of a group of so -called gene music joint. He composed a basis for a basis.

Instead of taking the usual approach, the frishkofoff used the Sonfigism, which provides data such as genetic views to sound or music.

The DNA is made up of four sites called “Law and G”. The DNA row representing the ACA-SCID has been converted into notes.

“What I decided to do is to explain them into spaces. The size gives you some sort of music,” Frishkofoff explained.

He took the melody and added the rhythm, and then Jacob’s mother Andrea Fernandez wrote the song.

“It brings me back for the days of Jacob when he was a child. It was a very strong power to help him.

“He asked him to help me survive through this process.”

Last spring and summer, The family is in California. Participate in Stem cell therapy test.

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Edmanton Boy, who lives in a rare ‘bubble’ position, can soon get a lifelong treatment

Now the five -year -old Jacob is out of the bubble – going to school for the first time and doing things that all the boys do.

Check out the video above this story for more information.

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